Today marks the second anniversary of Blake’s death. Some people call it an angelversary or remembrance of the date of passing. It’s just a really hard and shitty day for Jeff and I. It’s a reminder (although we never forget) that our baby is no longer with us. It feels like yesterday and so long… Continue reading August 10, 2016
Today, August 1, marks the beginning of SMA (Spinal Muscular Atrophy) Awareness month. August is my least favorite month of the year. On the 10th, we will come around to the second anniversary of Blake’s death. The only thing that helps me through this month is trying to do good in her name and making… Continue reading SMA awareness month
This is our third year of making Team Blake shirts. We design a new shirt every year around this time because of a walk we do for Cure SMA. We aren’t doing so well this year with only 6 people who have purchased so far. Help us out! If you can’t help by buying a… Continue reading Team Blake
It feels like Blakey slips away more and more as time passes. It’s harder for us to find moments that are full of her. A while back the idea came up to plant a tree for her. At first I thought it was silly. Then I realized the meaning of it: something that we could… Continue reading A tree for my girl
Today, the girls, Jeff and I attended an annual memorial service at Seattle Children’s. This was our first year since we were unable to go last year. We walked into the same auditorium I spoke on a parent panel back in March. This time there was a table full of pictures and mementos of children… Continue reading Love never leaves
Today my Blakey would be 2 years old. I can’t believe it’s been that long already. In all honesty, I still can’t believe we will never celebrate a birthday with her here. Important days, like today, mostly make me feel numb. I almost have to remind myself that yes, this is actually real and yes,… Continue reading She would be two
This time last year, we started fundraising for the annual Cure SMA Walk-n-Roll that happens in our area. CureSMA is an organization we were introduced to shortly after Blake’s diagnosis. They do a lot of important and helpful things for families like ours during their most difficult times, all while passionately trying to find a… Continue reading Team Blake
