This is our third year of making Team Blake shirts. We design a new shirt every year around this time because of a walk we do for Cure SMA. We aren’t doing so well this year with only 6 people who have purchased so far. Help us out! If you can’t help by buying a… Continue reading Team Blake
It feels like Blakey slips away more and more as time passes. It’s harder for us to find moments that are full of her. A while back the idea came up to plant a tree for her. At first I thought it was silly. Then I realized the meaning of it: something that we could… Continue reading A tree for my girl
Today, the girls, Jeff and I attended an annual memorial service at Seattle Children’s. This was our first year since we were unable to go last year. We walked into the same auditorium I spoke on a parent panel back in March. This time there was a table full of pictures and mementos of children… Continue reading Love never leaves
Today my Blakey would be 2 years old. I can’t believe it’s been that long already. In all honesty, I still can’t believe we will never celebrate a birthday with her here. Important days, like today, mostly make me feel numb. I almost have to remind myself that yes, this is actually real and yes,… Continue reading She would be two
This time last year, we started fundraising for the annual Cure SMA Walk-n-Roll that happens in our area. CureSMA is an organization we were introduced to shortly after Blake’s diagnosis. They do a lot of important and helpful things for families like ours during their most difficult times, all while passionately trying to find a… Continue reading Team Blake
A year ago today, Jeff, Blake and I sat in an exam room at Seattle Children’s Hospital. I was holding my sweet baby girl as she was falling asleep. We were alone, waiting for the doctors to come back in. They were going to tell me something I already knew. They were going to tell… Continue reading Diagnosis day
It was this time last year when doctors finally started listening to me. We got confirmation, after what felt like forever, that something “wasn’t normal (I hate this word)” with Blake’s development. Facebook has been reminding me of appointments, cryptic worry and all the unknowns during that time. It brings up more questions like, “Why… Continue reading A year ago
For multiple reasons, I try to avoid talking about some things on here. I don’t want to make people feel worse for us. I want to show there are positives that still happen and I’m still grateful, always. Greater than my desire to show positives, though, is my trying to remain truthful. My struggle is,… Continue reading What is it like?
I was going through some of my mom’s pictures last night. Sometimes, I like to look at the photos my family took of Blake instead of my own. They have tons I’ve never seen (or don’t remember seeing) and I like that. This one in particular struck me. I mean, they all do, but today… Continue reading Running
As soon as Blake was a couple months old, I knew she was special. Shortly before she was diagnosed with SMA, I knew that her life would mean more than I ever could have imagined. After the reality of her diagnosis, I also knew I would never stop trying to show people all that I… Continue reading The Sunshine Company
