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Still Finding Sunshine

Sharing the story of our family and our daughter who was diagnosed with Spinal Muscular Atrophy, type 1

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Month: September 2016

Artful ashes
Blake · Family · grief

Artful ashes

September 26, 2016 BlakesMama2 Comments

Something that became very important to us, once SMA entered our lives, was having experiences. We wanted Blake to experience absolutely everything that she safely could. Jeff and I are still determined to experience more in this life, because our bodies allow us to. We feel we owe that to our youngest daughter. We want… Continue reading Artful ashes

Six weeks
Blake · Family · grief · Kenley

Six weeks

September 23, 2016September 23, 2016 BlakesMama1 Comment

Blake has been gone just over six weeks. I have absolutely no idea how that much time has passed. We had spent 5 months and 1 day since she was diagnosed trying to prepare ourselves, for her to leave, as best we could. Let’s be real; there is no preparation. There’s no way to be… Continue reading Six weeks

Blake’s First Birthday
Blake · grief

Blake’s First Birthday

September 5, 2016September 22, 2016 BlakesMama2 Comments

Blake’s first birthday is coming up on September 17. I remember the day I met her so vividly; it is tied with the birth of her older sister as the best day of my life. The doctor told me to push and I did –once- and there she was. She wouldn’t let me put her… Continue reading Blake’s First Birthday

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