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Still Finding Sunshine

Sharing the story of our family and our daughter who was diagnosed with Spinal Muscular Atrophy, type 1

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Category: Family

We meet
adoption · Family

We meet

November 1, 2019November 30, 2019 BlakesMamaLeave a comment

If you missed it, read A baby? first. After we said yes, we told the social worker that we would like to go and see her in the hospital. It only took a couple hours before we were given the go ahead to visit. I remember saying to Jeff in the elevator, “What do we say… Continue reading We meet

Team Blake Year Four
Blake · Family · grief

Team Blake Year Four

June 22, 2019 BlakesMamaLeave a comment

This is our fourth year making Team Blake shirts. We design a new one every year around this time because of a walk we do for Cure SMA. I always have a fear that no one will buy. Then you all blow me away. All proceeds from tees sold go to Cure SMA on behalf… Continue reading Team Blake Year Four

It’s a lot
Blake · Family · grief

It’s a lot

February 6, 2019 BlakesMamaLeave a comment

In just a few days, it will be 2 years and 6 months since Blake died. I will never stop saying that I can’t believe SMA came into our lives and stole my perfect girl. All the time we ask ourselves why this happened? Why her? Why our family? My big girl has been asking… Continue reading It’s a lot

My secret
Family

My secret

November 26, 2018 BlakesMama1 Comment

My sweet friend told me recently, “I think you’re just better at being a mom than I am. You make it look so easy.” Here’s the deal: I think we all suffer a little bit from highlighting the happy or good looking times on social media. I don’t know about you, but I’m not super… Continue reading My secret

Parenting
Blake · Family · Life

Parenting

August 28, 2018August 28, 2018 BlakesMama3 Comments

Most loss parents dread the question, “How many children do you have?” I am one of them. I. Hate. It. Seriously, every single time I get that awful feeling of so much sadness and not knowing what to say. Do I tell them all about my family and accept the discomfort and look of terror… Continue reading Parenting

Kindness matters
Family

Kindness matters

July 22, 2018July 23, 2018 BlakesMama1 Comment

I traveled this week to Southern Oregon where my Grandmother and other extended family lives. We had gotten a call days before that required my mom to emergently travel. When she arrived it was clear to my sister and I that we should follow. I won’t go into detail (because I don’t think my Grandma… Continue reading Kindness matters

New adventures
Family

New adventures

July 5, 2018July 5, 2018 BlakesMama5 Comments

We have been working on something for a little while so I’ll rewind back a bit. Jeff and I always thought we’d have lots of kids. Ok, maybe just me but Jeff married me so whatever. After we lost Blake, we were surprised by our pregnancy with Ayla. We are so grateful to be our girls’… Continue reading New adventures

Something my Dad told me
Family

Something my Dad told me

June 16, 2018June 16, 2018 BlakesMama3 Comments

I was driving to work the other day and the guy on the radio was talking about Father’s Day. He asked people to call in and answer the question, “What is something your Dad told you that you’ve always remembered? Something that just really sticks with you.” I knew my answer immediately. When I was… Continue reading Something my Dad told me

It’s been a while
Family

It’s been a while

October 17, 2017October 17, 2017 BlakesMama2 Comments

It’s been a long time since I sat down to even think about writing a blog post. Ayla recently turned 3 months old and I can’t believe it. We’ve had a hard few months since she was born. Kenley and Blake were both happy tiny babies. Blake was the happiest and Kenley could usually be… Continue reading It’s been a while

Ayla Blake
Family

Ayla Blake

August 1, 2017August 1, 2017 BlakesMamaLeave a comment

We’ve been so busy with our newest addition, I haven’t had much time to write (or do anything else). I introduced her over on Facebook but neglected to do so here. Ayla Blake was born just over three weeks ago. She weighed 8lbs 6oz (our littlest!) and was 20 1/2 inches long. We’re still in… Continue reading Ayla Blake

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