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Still Finding Sunshine

Sharing the story of our family and our daughter who was diagnosed with Spinal Muscular Atrophy, type 1

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Month: May 2016

Jeff
Family · Life

Jeff

May 28, 2016May 28, 2016 BlakesMama5 Comments

Jeff and I have been through what some might consider challenging times. Before we got married, Jeff joined the Army and we were long distance for a year. Right after we married, Jeff deployed to Iraq. Shortly after he came home, he was medically retired from the Army. I came back home to Washington and… Continue reading Jeff

A picture
Blake · Family

A picture

May 19, 2016May 19, 2016 BlakesMama4 Comments

The featured image is one of my favorites. Brand new baby Blake in Daddy’s arms. I’ve been taking even more pictures than I used to. The other night I started going through them. I had just ordered hundreds more to add to the stacks of pictures I still have to sort through. I was really good… Continue reading A picture

The beach
Family · Life

The beach

May 13, 2016 BlakesMama6 Comments

Yesterday we went to the beach. Jeff and I decided to pack up the girls early and just go. The weather was beautiful and we ended up being the only people on the entire beach. We set up all our stuff, ate snacks and listened to music. Kenley told us ten times how much fun (or… Continue reading The beach

Being a mom
Blake · Kenley

Being a mom

May 9, 2016May 9, 2016 BlakesMama8 Comments

My mom always says I’ve been a mother my whole life, even when I was a little kid. I loved dolls; I was borderline obsessed with them. My family called me “little mommy”. I begged my big sister to walk me to the hospital, three blocks away from our house, so I could go and… Continue reading Being a mom

Blake · Family · Life

Genetics

May 2, 2016May 2, 2016 BlakesMama4 Comments

I’ve learned a lot about SMA, but I’m still no genetics expert. Jeff and I have an appointment in the future with our hospital genetics department for just the two of us. We want to understand a lot more and I know we’ll keep learning. With that being said, I want to talk about my experiences during both… Continue reading Genetics

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