Last year for Blake’s first birthday we did a toy drive in her honor. We collected toys and comfort items for other babies who had been diagnosed with SMA. It was wildly successful, mostly due to all of your generous donations, and we were able to send boxes and boxes to Cure SMA. On our… Continue reading Families in the hospital
Today my Blakey would be 2 years old. I can’t believe it’s been that long already. In all honesty, I still can’t believe we will never celebrate a birthday with her here. Important days, like today, mostly make me feel numb. I almost have to remind myself that yes, this is actually real and yes,… Continue reading She would be two
This is something I wrote for the newsletter of a local support group, Parents of Puget Sound Support. They offer resources for families in the Pacific Northwest who have lost a child through miscarriage, stillbirth or in infancy. I thought I would share here too. It was the day of my daughter’s Celebration of Life.… Continue reading Never the same
A year ago today, Jeff, Blake and I sat in an exam room at Seattle Children’s Hospital. I was holding my sweet baby girl as she was falling asleep. We were alone, waiting for the doctors to come back in. They were going to tell me something I already knew. They were going to tell… Continue reading Diagnosis day
For multiple reasons, I try to avoid talking about some things on here. I don’t want to make people feel worse for us. I want to show there are positives that still happen and I’m still grateful, always. Greater than my desire to show positives, though, is my trying to remain truthful. My struggle is,… Continue reading What is it like?
I was going through some of my mom’s pictures last night. Sometimes, I like to look at the photos my family took of Blake instead of my own. They have tons I’ve never seen (or don’t remember seeing) and I like that. This one in particular struck me. I mean, they all do, but today… Continue reading Running
As soon as Blake was a couple months old, I knew she was special. Shortly before she was diagnosed with SMA, I knew that her life would mean more than I ever could have imagined. After the reality of her diagnosis, I also knew I would never stop trying to show people all that I… Continue reading The Sunshine Company