I’ve had a lot of people say some really nice things. They say I’m strong or doing so well under the circumstances. Those words really do mean a lot to me. I appreciate them more than I can express. However, I want to make sure not to give anyone a false sense of reality. I’m… Continue reading Hard
From where I sit, dreams are a blessing and a curse. They often feel too much like reality. I’ve had the same dream over and over since Blake was about 2 1/2 months old. In this dream I’m holding Blake, she smiles at me, babbling. I smile back and make funny faces. Then, I stand… Continue reading Dreams
I’ve had an amazing relationship with Blake since the day we met. I have a great relationship with Kenley, too, but things were different when she was tiny. I was a first time mom; nervous and trying to do everything perfectly. With Blake, I relaxed a lot more and just kind of went ‘with the… Continue reading What she needs
One of the most positive things to come out of Blake’s diagnosis is all the support we’re getting. Seriously, it’s overwhelming. We love it so much. My mom has been staying at our house almost every night to help with anything we need. My sister has been staying over when my mom can’t and coming… Continue reading All the people
I’m sure it’s obvious from previous posts (and since I’m a human being) that anger is something I feel on the regular. I never thought anything could happen to my child. Bet that sounds naive. It is. I always figured, once your baby is born and examined, you’re good. I knew raising children would include… Continue reading Pissed
After you’ve been told your baby has a fatal illness, nothing in the world makes sense. Everything is wrong, so very wrong. I think back on the first couple of days after we found out, which wasn’t that long ago, and I don’t remember a lot. Obviously, a ton of crying happened… a ton. I… Continue reading The days after diagnosis
We’ve had a great deal of well wishes and concern for Kenley. We love that; thank you. I thought I’d take the opportunity to talk about her since we celebrated her turning 2 this week! I can’t believe she is already so big and still so little. She absolutely loves the nice weather we’ve been… Continue reading Kenley
Jeff and I packed up Blake, left Kenley with my sister and headed to Seattle for our visit with Neurology. I had been nervous for every single appointment so far, but this one caused a special amount of anxiety. I was on the verge of barfing the whole way there. It’s like I somehow knew.… Continue reading You mentioned SMA
Welcome to what will, hopefully, be a blog people actually read. I’ve decided to start writing on here for a couple reasons. First and foremost, there are lots of family and friends who care about Blake and us that are very far away. I’d like to be able to share as much as I can… Continue reading The Beginning
Still Finding Sunshine 