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Still Finding Sunshine

Sharing the story of our family and our daughter who was diagnosed with Spinal Muscular Atrophy, type 1

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Month: August 2016

Blake’s Celebration
Blake · grief

Blake’s Celebration

August 31, 2016August 31, 2016 BlakesMama5 Comments

The last 21 days have been very intense for our family. We lost Blake so quickly, I’m not ready to even speak about that yet, let alone put it out here. It’s been the longest 21 days of my life. It truly feels like forever. I miss her so much and it hurts so bad.… Continue reading Blake’s Celebration

Easy?
Blake

Easy?

August 20, 2016August 21, 2016 BlakesMama9 Comments

I want to thank those of you who have reached out to me; it means a lot during this extremely difficult time. People whom I’ve never met are taking the time to think of us and pray for my family. That really blows me away and I’m grateful. Many people have asked how we’re doing.… Continue reading Easy?

Blake Avery Reid
Blake

Blake Avery Reid

August 11, 2016 BlakesMama10 Comments

We are devastated to let all of you know, our sweet Blake Avery took her last breath this afternoon. She was in her Daddy’s arms, with all of us, at the park listening to music. There was no struggle or pain which we are so grateful for. We are heartbroken, we miss her and love… Continue reading Blake Avery Reid

Team Blake
Blake

Team Blake

August 2, 2016 BlakesMamaLeave a comment

August is SMA Awareness Month! SMA is Spinal Muscular Atrophy. Most of you already know SMA Type 1 is what our Blake has. But- did you know 1 in 40 people are SMA carriers? Blake was diagnosed shortly before she was six months old. SMA has no treatment. SMA has no cure. In honor of… Continue reading Team Blake

Forget
Blake · Family · Kenley

Forget

August 1, 2016 BlakesMama3 Comments

The other day Jeff and I were packing the kids up to run an errand. Jeff put Blake in her car seat while I helped Kenley get her shoes on. He suddenly remembered that he left the dogs in the backyard, so he ran outside. I picked up Blake, held Kenley’s hand and started toward… Continue reading Forget

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