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Still Finding Sunshine

Sharing the story of our family and our daughter who was diagnosed with Spinal Muscular Atrophy, type 1

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Month: June 2018

Why?
grief

Why?

June 22, 2018June 23, 2018 BlakesMama2 Comments

We aren’t very religious. I would say even less so since Blake died. Sometimes I think we’re spiritual but I don’t know. I’ve never been one to tie myself to anything like that. I wish I was certain about what happens after this life like so many others are. But I’m not. A few weeks… Continue reading Why?

Team Blake
Blake

Team Blake

June 20, 2018June 21, 2018 BlakesMamaLeave a comment

This is our third year of making Team Blake shirts. We design a new shirt every year around this time because of a walk we do for Cure SMA. We aren’t doing so well this year with only 6 people who have purchased so far. Help us out! If you can’t help by buying a… Continue reading Team Blake

Something my Dad told me
Family

Something my Dad told me

June 16, 2018June 16, 2018 BlakesMama3 Comments

I was driving to work the other day and the guy on the radio was talking about Father’s Day. He asked people to call in and answer the question, “What is something your Dad told you that you’ve always remembered? Something that just really sticks with you.” I knew my answer immediately. When I was… Continue reading Something my Dad told me

A tree for my girl
Blake · grief

A tree for my girl

June 11, 2018 BlakesMama2 Comments

It feels like Blakey slips away more and more as time passes. It’s harder for us to find moments that are full of her. A while back the idea came up to plant a tree for her. At first I thought it was silly. Then I realized the meaning of it: something that we could… Continue reading A tree for my girl

Love never leaves
Blake · grief

Love never leaves

June 3, 2018 BlakesMamaLeave a comment

Today, the girls, Jeff and I attended an annual memorial service at Seattle Children’s. This was our first year since we were unable to go last year. We walked into the same auditorium I spoke on a parent panel back in March. This time there was a table full of pictures and mementos of children… Continue reading Love never leaves

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