I brought my laptop along this vacation. I had big ideas of writing as often as I wanted out on the deck in the Hawaiian breeze. All by myself. Well, this is our last night and I’m finally sitting out here with all three girls. One in my lap and the other two playing with… Continue reading Changes?
Most loss parents dread the question, “How many children do you have?” I am one of them. I. Hate. It. Seriously, every single time I get that awful feeling of so much sadness and not knowing what to say. Do I tell them all about my family and accept the discomfort and look of terror… Continue reading Parenting
Recently, I’ve had a great deal of really nice comments from people. They’ve said things about me “having it all together”, “handling loss with grace” and “being so strong.” I’m so appreciative of people who reach out to me and say kind things. I really, really am. They also got me thinking about what I… Continue reading All together? Nope.
A very kind person made a comment to me the other day. She had looked at some of my Facebook photos and then said, “I’m so glad to see you are happy now after all you’ve been through.” That one really got me thinking. How do you measure happiness? Smiling for a photo? Laughing at… Continue reading Happy now?
I had an appointment with my grief therapist the other day. I haven’t seen her in a couple weeks because of Kenley’s leg and going back to work. She started asking me questions and I unloaded. I didn’t realize I had so many things to say. I told her I couldn’t understand why so many… Continue reading Fine
Today, I attended one of my dearest friend’s husband’s Celebration of Life. He passed away, recently, after a long battle with cancer. He leaves behind two teenage children, a wife, a ton of extended family and so many others. While driving there, I couldn’t help but feel really angry. These kids and this amazing woman… Continue reading My friend
Jeff and I have been through what some might consider challenging times. Before we got married, Jeff joined the Army and we were long distance for a year. Right after we married, Jeff deployed to Iraq. Shortly after he came home, he was medically retired from the Army. I came back home to Washington and… Continue reading Jeff
Yesterday we went to the beach. Jeff and I decided to pack up the girls early and just go. The weather was beautiful and we ended up being the only people on the entire beach. We set up all our stuff, ate snacks and listened to music. Kenley told us ten times how much fun (or… Continue reading The beach
I’ve learned a lot about SMA, but I’m still no genetics expert. Jeff and I have an appointment in the future with our hospital genetics department for just the two of us. We want to understand a lot more and I know we’ll keep learning. With that being said, I want to talk about my experiences during both… Continue reading Genetics
I’ve had a lot of people say some really nice things. They say I’m strong or doing so well under the circumstances. Those words really do mean a lot to me. I appreciate them more than I can express. However, I want to make sure not to give anyone a false sense of reality. I’m… Continue reading Hard