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Still Finding Sunshine

Sharing the story of our family and our daughter who was diagnosed with Spinal Muscular Atrophy, type 1

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Category: Family

Vacation and Anniversary
Family

Vacation and Anniversary

May 27, 2017May 27, 2017 BlakesMama1 Comment

We decided to take a little vacation. We’ve taken some sort of vacation before each of our babies were born. This time we ended up closer to home, on a lake with perfect weather and lots for Kenley to do. We’ve really needed a break with everything going on. I had forgotten how much work… Continue reading Vacation and Anniversary

News
Family

News

February 16, 2017March 1, 2017 BlakesMama11 Comments

I shared on Facebook that we are expecting baby number 3 earlier this week. I’ve been worried about sharing this news; worried in different kinds of ways. I continue to be surprised by the reactions of others. When we announced we were pregnant with Blake, some people were very kind. Other people were not. Kenley… Continue reading News

Artful ashes
Blake · Family · grief

Artful ashes

September 26, 2016 BlakesMama2 Comments

Something that became very important to us, once SMA entered our lives, was having experiences. We wanted Blake to experience absolutely everything that she safely could. Jeff and I are still determined to experience more in this life, because our bodies allow us to. We feel we owe that to our youngest daughter. We want… Continue reading Artful ashes

Six weeks
Blake · Family · grief · Kenley

Six weeks

September 23, 2016September 23, 2016 BlakesMama1 Comment

Blake has been gone just over six weeks. I have absolutely no idea how that much time has passed. We had spent 5 months and 1 day since she was diagnosed trying to prepare ourselves, for her to leave, as best we could. Let’s be real; there is no preparation. There’s no way to be… Continue reading Six weeks

Forget
Blake · Family · Kenley

Forget

August 1, 2016 BlakesMama3 Comments

The other day Jeff and I were packing the kids up to run an errand. Jeff put Blake in her car seat while I helped Kenley get her shoes on. He suddenly remembered that he left the dogs in the backyard, so he ran outside. I picked up Blake, held Kenley’s hand and started toward… Continue reading Forget

My friend
Family · Life

My friend

July 22, 2016July 22, 2016 BlakesMama2 Comments

Today, I attended one of my dearest friend’s husband’s Celebration of Life. He passed away, recently, after a long battle with cancer. He leaves behind two teenage children, a wife, a ton of extended family and so many others. While driving there, I couldn’t help but feel really angry. These kids and this amazing woman… Continue reading My friend

Extended family
Family

Extended family

July 20, 2016 BlakesMama5 Comments

Blake’s diagnosis has shaken our lives. Not just mine and my husband’s, but our extended family, too. As I’ve said before, my mom, dad and sister have been supporting us and helping out. They’re around a lot, so they see and feel what’s happening.  My sister, Lindsay, shared something with me and I asked her… Continue reading Extended family

How we do it
Family

How we do it

July 17, 2016July 17, 2016 BlakesMama4 Comments

“I don’t know how you do it. I would just die.” Someone said this to us, not long ago. At first I was taken aback for a moment, mostly because I feel ill every time I hear the word “die”. Those three letters, put together, cut me way too deep. I hate them. This lady… Continue reading How we do it

Camping
Family

Camping

July 2, 2016July 2, 2016 BlakesMama4 Comments

One thing Jeff and I had in common from the beginning of our relationship was our love of camping. As I’m typing this, that sounds strange; but, we’re strange, so whatever! We talked about camping in a tent. Then I was pregnant with Kenley, so I wasn’t a fan of sleeping on the ground. When… Continue reading Camping

Bunk beds
Family

Bunk beds

June 15, 2016June 15, 2016 BlakesMama4 Comments

We bought a sectional when I was pregnant with Blake. A couple months ago it started making noises. We had the warranty people come and look at it; turns out it’s toast and we get a new one!  We decided to make a day of going to the furniture store to find a brand new… Continue reading Bunk beds

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