Something that became very important to us, once SMA entered our lives, was having experiences. We wanted Blake to experience absolutely everything that she safely could. Jeff and I are still determined to experience more in this life, because our bodies allow us to. We feel we owe that to our youngest daughter. We want… Continue reading Artful ashes
Blake has been gone just over six weeks. I have absolutely no idea how that much time has passed. We had spent 5 months and 1 day since she was diagnosed trying to prepare ourselves, for her to leave, as best we could. Let’s be real; there is no preparation. There’s no way to be… Continue reading Six weeks
Blake’s first birthday is coming up on September 17. I remember the day I met her so vividly; it is tied with the birth of her older sister as the best day of my life. The doctor told me to push and I did –once- and there she was. She wouldn’t let me put her… Continue reading Blake’s First Birthday
The last 21 days have been very intense for our family. We lost Blake so quickly, I’m not ready to even speak about that yet, let alone put it out here. It’s been the longest 21 days of my life. It truly feels like forever. I miss her so much and it hurts so bad.… Continue reading Blake’s Celebration
I want to thank those of you who have reached out to me; it means a lot during this extremely difficult time. People whom I’ve never met are taking the time to think of us and pray for my family. That really blows me away and I’m grateful. Many people have asked how we’re doing.… Continue reading Easy?
August is SMA Awareness Month! SMA is Spinal Muscular Atrophy. Most of you already know SMA Type 1 is what our Blake has. But- did you know 1 in 40 people are SMA carriers? Blake was diagnosed shortly before she was six months old. SMA has no treatment. SMA has no cure. In honor of… Continue reading Team Blake
The other day Jeff and I were packing the kids up to run an errand. Jeff put Blake in her car seat while I helped Kenley get her shoes on. He suddenly remembered that he left the dogs in the backyard, so he ran outside. I picked up Blake, held Kenley’s hand and started toward… Continue reading Forget
Today, I attended one of my dearest friend’s husband’s Celebration of Life. He passed away, recently, after a long battle with cancer. He leaves behind two teenage children, a wife, a ton of extended family and so many others. While driving there, I couldn’t help but feel really angry. These kids and this amazing woman… Continue reading My friend
Blake’s diagnosis has shaken our lives. Not just mine and my husband’s, but our extended family, too. As I’ve said before, my mom, dad and sister have been supporting us and helping out. They’re around a lot, so they see and feel what’s happening. My sister, Lindsay, shared something with me and I asked her… Continue reading Extended family
“I don’t know how you do it. I would just die.” Someone said this to us, not long ago. At first I was taken aback for a moment, mostly because I feel ill every time I hear the word “die”. Those three letters, put together, cut me way too deep. I hate them. This lady… Continue reading How we do it
Still Finding Sunshine 