August is SMA Awareness Month! SMA is Spinal Muscular Atrophy. Most of you already know SMA Type 1 is what our Blake has. But- did you know 1 in 40 people are SMA carriers? Blake was diagnosed shortly before she was six months old. SMA has no treatment. SMA has no cure. In honor of the love we share for Blake, our family is participating in the 2016 Cure SMA Walk-n-Roll this month. As a family, we have made it our mission to raise awareness and funds to fight SMA. Please help us by purchasing one of our TEAM BLAKE shirts. All proceeds go directly to Cure SMA.
https://www.bonfirefunds.com/team-blake-cure-sma
If you’re interested in learning more about what it means to be a carrier or carrier testing please visit the thegsf.org. We’re open to questions too!