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Still Finding Sunshine

Sharing the story of our family and our daughter who was diagnosed with Spinal Muscular Atrophy, type 1

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Tag: child loss

Rainbow
grief

Rainbow

October 4, 2020 BlakesMama3 Comments

Well, hello! I haven’t been writing on here for quite some time. Something that used to make me feel a tiny bit normal sort of became the opposite. I’m going to try this one out and see how it goes! I was scrolling through Instagram a while back when I came across a post about… Continue reading Rainbow

It’s a lot
Blake · Family · grief

It’s a lot

February 6, 2019 BlakesMamaLeave a comment

In just a few days, it will be 2 years and 6 months since Blake died. I will never stop saying that I can’t believe SMA came into our lives and stole my perfect girl. All the time we ask ourselves why this happened? Why her? Why our family? My big girl has been asking… Continue reading It’s a lot

October 15
grief

October 15

October 15, 2018 BlakesMama3 Comments

Today is Pregnancy and Infant Loss Remembrance Day or Child Loss Remembrance Day. I prefer the latter but that’s just me. One of the reasons this blog still exists is to spread awareness. It’s definitely more than just awareness of Spinal Muscular Atrophy (although you will NEVER stop hearing from me about SMA). It’s child… Continue reading October 15

All together? Nope.
grief · Life

All together? Nope.

August 22, 2018August 22, 2018 BlakesMama2 Comments

Recently, I’ve had a great deal of really nice comments from people. They’ve said things about me “having it all together”, “handling loss with grace” and “being so strong.” I’m so appreciative of people who reach out to me and say kind things. I really, really am. They also got me thinking about what I… Continue reading All together? Nope.

August 10, 2016
Blake · grief

August 10, 2016

August 10, 2018August 10, 2018 BlakesMamaLeave a comment

Today marks the second anniversary of Blake’s death. Some people call it an angelversary or remembrance of the date of passing. It’s just a really hard and shitty day for Jeff and I. It’s a reminder (although we never forget) that our baby is no longer with us. It feels like yesterday and so long… Continue reading August 10, 2016

SMA awareness month
Blake

SMA awareness month

August 1, 2018August 1, 2018 BlakesMama1 Comment

Today, August 1, marks the beginning of SMA (Spinal Muscular Atrophy) Awareness month. August is my least favorite month of the year. On the 10th, we will come around to the second anniversary of Blake’s death. The only thing that helps me through this month is trying to do good in her name and making… Continue reading SMA awareness month

New adventures
Family

New adventures

July 5, 2018July 5, 2018 BlakesMama5 Comments

We have been working on something for a little while so I’ll rewind back a bit. Jeff and I always thought we’d have lots of kids. Ok, maybe just me but Jeff married me so whatever. After we lost Blake, we were surprised by our pregnancy with Ayla. We are so grateful to be our girls’… Continue reading New adventures

Why?
grief

Why?

June 22, 2018June 23, 2018 BlakesMama2 Comments

We aren’t very religious. I would say even less so since Blake died. Sometimes I think we’re spiritual but I don’t know. I’ve never been one to tie myself to anything like that. I wish I was certain about what happens after this life like so many others are. But I’m not. A few weeks… Continue reading Why?

A tree for my girl
Blake · grief

A tree for my girl

June 11, 2018 BlakesMama2 Comments

It feels like Blakey slips away more and more as time passes. It’s harder for us to find moments that are full of her. A while back the idea came up to plant a tree for her. At first I thought it was silly. Then I realized the meaning of it: something that we could… Continue reading A tree for my girl

Love never leaves
Blake · grief

Love never leaves

June 3, 2018 BlakesMamaLeave a comment

Today, the girls, Jeff and I attended an annual memorial service at Seattle Children’s. This was our first year since we were unable to go last year. We walked into the same auditorium I spoke on a parent panel back in March. This time there was a table full of pictures and mementos of children… Continue reading Love never leaves

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