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Still Finding Sunshine

Sharing the story of our family and our daughter who was diagnosed with Spinal Muscular Atrophy, type 1

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Why?
grief

Why?

June 22, 2018June 23, 2018 BlakesMama2 Comments

We aren’t very religious. I would say even less so since Blake died. Sometimes I think we’re spiritual but I don’t know. I’ve never been one to tie myself to anything like that. I wish I was certain about what happens after this life like so many others are. But I’m not. A few weeks… Continue reading Why?

Team Blake
Blake

Team Blake

June 20, 2018June 21, 2018 BlakesMamaLeave a comment

This is our third year of making Team Blake shirts. We design a new shirt every year around this time because of a walk we do for Cure SMA. We aren’t doing so well this year with only 6 people who have purchased so far. Help us out! If you can’t help by buying a… Continue reading Team Blake

Something my Dad told me
Family

Something my Dad told me

June 16, 2018June 16, 2018 BlakesMama3 Comments

I was driving to work the other day and the guy on the radio was talking about Father’s Day. He asked people to call in and answer the question, “What is something your Dad told you that you’ve always remembered? Something that just really sticks with you.” I knew my answer immediately. When I was… Continue reading Something my Dad told me

A tree for my girl
Blake · grief

A tree for my girl

June 11, 2018 BlakesMama2 Comments

It feels like Blakey slips away more and more as time passes. It’s harder for us to find moments that are full of her. A while back the idea came up to plant a tree for her. At first I thought it was silly. Then I realized the meaning of it: something that we could… Continue reading A tree for my girl

Love never leaves
Blake · grief

Love never leaves

June 3, 2018 BlakesMamaLeave a comment

Today, the girls, Jeff and I attended an annual memorial service at Seattle Children’s. This was our first year since we were unable to go last year. We walked into the same auditorium I spoke on a parent panel back in March. This time there was a table full of pictures and mementos of children… Continue reading Love never leaves

Happy now?
grief · Life

Happy now?

May 19, 2018May 20, 2018 BlakesMama1 Comment

A very kind person made a comment to me the other day. She had looked at some of my Facebook photos and then said, “I’m so glad to see you are happy now after all you’ve been through.” That one really got me thinking. How do you measure happiness? Smiling for a photo? Laughing at… Continue reading Happy now?

Diagnosis day take 3
grief

Diagnosis day take 3

March 9, 2018March 13, 2018 BlakesMamaLeave a comment

This space of mine has been neglected lately. Between home life, my day job and The Sunshine Co., I feel like I’m going in a million directions. There are so many things that will stop me in my tracks because of my grief. So far, one of those things just happens to be dates. Today,… Continue reading Diagnosis day take 3

Families in the hospital
grief

Families in the hospital

November 28, 2017April 13, 2020 BlakesMamaImageLeave a comment

Last year for Blake’s first birthday we did a toy drive in her honor. We collected toys and comfort items for other babies who had been diagnosed with SMA. It was wildly successful, mostly due to all of your generous donations, and we were able to send boxes and boxes to Cure SMA. On our… Continue reading Families in the hospital

It’s been a while
Family

It’s been a while

October 17, 2017October 17, 2017 BlakesMama2 Comments

It’s been a long time since I sat down to even think about writing a blog post. Ayla recently turned 3 months old and I can’t believe it. We’ve had a hard few months since she was born. Kenley and Blake were both happy tiny babies. Blake was the happiest and Kenley could usually be… Continue reading It’s been a while

She would be two
Blake · grief

She would be two

September 17, 2017September 17, 2017 BlakesMama1 Comment

Today my Blakey would be 2 years old. I can’t believe it’s been that long already. In all honesty, I still can’t believe we will never celebrate a birthday with her here. Important days, like today, mostly make me feel numb. I almost have to remind myself that yes, this is actually real and yes,… Continue reading She would be two

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