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Still Finding Sunshine

Sharing the story of our family and our daughter who was diagnosed with Spinal Muscular Atrophy, type 1

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Author: BlakesMama

October 15
grief

October 15

October 15, 2018 BlakesMama3 Comments

Today is Pregnancy and Infant Loss Remembrance Day or Child Loss Remembrance Day. I prefer the latter but that’s just me. One of the reasons this blog still exists is to spread awareness. It’s definitely more than just awareness of Spinal Muscular Atrophy (although you will NEVER stop hearing from me about SMA). It’s child… Continue reading October 15

Talking to kids about death
grief

Talking to kids about death

October 2, 2018 BlakesMama1 Comment

If you’ve been with me here for a while, based on the title, you already know what I might say. If you don’t agree with me that’s just fine. I can only speak to my experience (along with tons of professional opinions I’ve gathered). People ask me questions about talking to kids about losing a… Continue reading Talking to kids about death

Three
Blake · grief

Three

September 17, 2018September 17, 2018 BlakesMama2 Comments

I can’t believe it. Today is the day that my second daughter was born three years ago. She was 8lbs 10oz, 21 inches long and completely perfect. Getting to watch my two girls meet for the first time is forever etched in my heart. We didn’t know then that she would end up with the… Continue reading Three

Parenting
Blake · Family · Life

Parenting

August 28, 2018August 28, 2018 BlakesMama3 Comments

Most loss parents dread the question, “How many children do you have?” I am one of them. I. Hate. It. Seriously, every single time I get that awful feeling of so much sadness and not knowing what to say. Do I tell them all about my family and accept the discomfort and look of terror… Continue reading Parenting

Foster questions
foster care

Foster questions

August 26, 2018August 26, 2018 BlakesMama1 Comment

I thought I would take a second to answer a handful of questions we’ve gotten more than once. Again, I’m not a foster expert. I’m also just a regular mama out here trying to do my best. I’m a fan of questions about almost everything (within reason, of course), Blake, SMA, end of life care,… Continue reading Foster questions

All together? Nope.
grief · Life

All together? Nope.

August 22, 2018August 22, 2018 BlakesMama2 Comments

Recently, I’ve had a great deal of really nice comments from people. They’ve said things about me “having it all together”, “handling loss with grace” and “being so strong.” I’m so appreciative of people who reach out to me and say kind things. I really, really am. They also got me thinking about what I… Continue reading All together? Nope.

August 10, 2016
Blake · grief

August 10, 2016

August 10, 2018August 10, 2018 BlakesMamaLeave a comment

Today marks the second anniversary of Blake’s death. Some people call it an angelversary or remembrance of the date of passing. It’s just a really hard and shitty day for Jeff and I. It’s a reminder (although we never forget) that our baby is no longer with us. It feels like yesterday and so long… Continue reading August 10, 2016

SMA awareness month
Blake

SMA awareness month

August 1, 2018August 1, 2018 BlakesMama1 Comment

Today, August 1, marks the beginning of SMA (Spinal Muscular Atrophy) Awareness month. August is my least favorite month of the year. On the 10th, we will come around to the second anniversary of Blake’s death. The only thing that helps me through this month is trying to do good in her name and making… Continue reading SMA awareness month

Kindness matters
Family

Kindness matters

July 22, 2018July 23, 2018 BlakesMama1 Comment

I traveled this week to Southern Oregon where my Grandmother and other extended family lives. We had gotten a call days before that required my mom to emergently travel. When she arrived it was clear to my sister and I that we should follow. I won’t go into detail (because I don’t think my Grandma… Continue reading Kindness matters

New adventures
Family

New adventures

July 5, 2018July 5, 2018 BlakesMama5 Comments

We have been working on something for a little while so I’ll rewind back a bit. Jeff and I always thought we’d have lots of kids. Ok, maybe just me but Jeff married me so whatever. After we lost Blake, we were surprised by our pregnancy with Ayla. We are so grateful to be our girls’… Continue reading New adventures

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