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Still Finding Sunshine

Sharing the story of our family and our daughter who was diagnosed with Spinal Muscular Atrophy, type 1

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Tag: grief

Grief Support Q&A
grief

Grief Support Q&A

February 25, 2021 BlakesMamaLeave a comment

Jeff and I get this question repeatedly: My ____ just lost their ___, what can I do? The question varies but usually includes death, a terminal diagnosis, some kind of very difficult path. I’m grateful people have trusted me with answering those questions and decided to ask my Instagram peeps what specific questions they have… Continue reading Grief Support Q&A

August 10, 2016
Blake · grief

August 10, 2016

August 10, 2018August 10, 2018 BlakesMamaLeave a comment

Today marks the second anniversary of Blake’s death. Some people call it an angelversary or remembrance of the date of passing. It’s just a really hard and shitty day for Jeff and I. It’s a reminder (although we never forget) that our baby is no longer with us. It feels like yesterday and so long… Continue reading August 10, 2016

Why?
grief

Why?

June 22, 2018June 23, 2018 BlakesMama2 Comments

We aren’t very religious. I would say even less so since Blake died. Sometimes I think we’re spiritual but I don’t know. I’ve never been one to tie myself to anything like that. I wish I was certain about what happens after this life like so many others are. But I’m not. A few weeks… Continue reading Why?

Team Blake
Blake

Team Blake

June 12, 2017 BlakesMamaLeave a comment

This time last year, we started fundraising for the annual Cure SMA Walk-n-Roll that happens in our area. CureSMA is an organization we were introduced to shortly after Blake’s diagnosis. They do a lot of important and helpful things for families like ours during their most difficult times, all while passionately trying to find a… Continue reading Team Blake

Vacation and Anniversary
Family

Vacation and Anniversary

May 27, 2017May 27, 2017 BlakesMama1 Comment

We decided to take a little vacation. We’ve taken some sort of vacation before each of our babies were born. This time we ended up closer to home, on a lake with perfect weather and lots for Kenley to do. We’ve really needed a break with everything going on. I had forgotten how much work… Continue reading Vacation and Anniversary

Easy?
Blake

Easy?

August 20, 2016August 21, 2016 BlakesMama9 Comments

I want to thank those of you who have reached out to me; it means a lot during this extremely difficult time. People whom I’ve never met are taking the time to think of us and pray for my family. That really blows me away and I’m grateful. Many people have asked how we’re doing.… Continue reading Easy?

My friend
Family · Life

My friend

July 22, 2016July 22, 2016 BlakesMama2 Comments

Today, I attended one of my dearest friend’s husband’s Celebration of Life. He passed away, recently, after a long battle with cancer. He leaves behind two teenage children, a wife, a ton of extended family and so many others. While driving there, I couldn’t help but feel really angry. These kids and this amazing woman… Continue reading My friend

Extended family
Family

Extended family

July 20, 2016 BlakesMama5 Comments

Blake’s diagnosis has shaken our lives. Not just mine and my husband’s, but our extended family, too. As I’ve said before, my mom, dad and sister have been supporting us and helping out. They’re around a lot, so they see and feel what’s happening.  My sister, Lindsay, shared something with me and I asked her… Continue reading Extended family

Bunk beds
Family

Bunk beds

June 15, 2016June 15, 2016 BlakesMama4 Comments

We bought a sectional when I was pregnant with Blake. A couple months ago it started making noises. We had the warranty people come and look at it; turns out it’s toast and we get a new one!  We decided to make a day of going to the furniture store to find a brand new… Continue reading Bunk beds

Hard
Blake · Family · Life

Hard

April 26, 2016April 26, 2016 BlakesMama12 Comments

I’ve had a lot of people say some really nice things. They say I’m strong or doing so well under the circumstances. Those words really do mean a lot to me. I appreciate them more than I can express.  However, I want to make sure not to give anyone a false sense of reality. I’m… Continue reading Hard

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