Jeff and I have been through what some might consider challenging times. Before we got married, Jeff joined the Army and we were long distance for a year. Right after we married, Jeff deployed to Iraq. Shortly after he came home, he was medically retired from the Army. I came back home to Washington and… Continue reading Jeff
The featured image is one of my favorites. Brand new baby Blake in Daddy’s arms. I’ve been taking even more pictures than I used to. The other night I started going through them. I had just ordered hundreds more to add to the stacks of pictures I still have to sort through. I was really good… Continue reading A picture
Yesterday we went to the beach. Jeff and I decided to pack up the girls early and just go. The weather was beautiful and we ended up being the only people on the entire beach. We set up all our stuff, ate snacks and listened to music. Kenley told us ten times how much fun (or… Continue reading The beach
I’ve learned a lot about SMA, but I’m still no genetics expert. Jeff and I have an appointment in the future with our hospital genetics department for just the two of us. We want to understand a lot more and I know we’ll keep learning. With that being said, I want to talk about my experiences during both… Continue reading Genetics
I’ve had a lot of people say some really nice things. They say I’m strong or doing so well under the circumstances. Those words really do mean a lot to me. I appreciate them more than I can express. However, I want to make sure not to give anyone a false sense of reality. I’m… Continue reading Hard
I’ve had an amazing relationship with Blake since the day we met. I have a great relationship with Kenley, too, but things were different when she was tiny. I was a first time mom; nervous and trying to do everything perfectly. With Blake, I relaxed a lot more and just kind of went ‘with the… Continue reading What she needs
One of the most positive things to come out of Blake’s diagnosis is all the support we’re getting. Seriously, it’s overwhelming. We love it so much. My mom has been staying at our house almost every night to help with anything we need. My sister has been staying over when my mom can’t and coming… Continue reading All the people
I’m sure it’s obvious from previous posts (and since I’m a human being) that anger is something I feel on the regular. I never thought anything could happen to my child. Bet that sounds naive. It is. I always figured, once your baby is born and examined, you’re good. I knew raising children would include… Continue reading Pissed
After you’ve been told your baby has a fatal illness, nothing in the world makes sense. Everything is wrong, so very wrong. I think back on the first couple of days after we found out, which wasn’t that long ago, and I don’t remember a lot. Obviously, a ton of crying happened… a ton. I… Continue reading The days after diagnosis
Still Finding Sunshine 