Tonight I went into Kenley’s room to fold her laundry. I’ve always been much better about doing my girls’ laundry than mine or Jeff’s. Sorting, washing, folding – I dislike the entire process. I started folding her clothes, realizing because of the weather change she has so many new ones. I was looking at labels… Continue reading Laundry
I had an appointment with my grief therapist the other day. I haven’t seen her in a couple weeks because of Kenley’s leg and going back to work. She started asking me questions and I unloaded. I didn’t realize I had so many things to say. I told her I couldn’t understand why so many… Continue reading Fine
It’s unbelievable our Blake is actually gone. It’s still hard to believe SMA came into our lives and took my innocent baby girl. It’s hard to believe this happened to my family. But it did; it happened to us. It happened to me. I used to read a lot of tragic stories and think to… Continue reading Nightmare
Something that became very important to us, once SMA entered our lives, was having experiences. We wanted Blake to experience absolutely everything that she safely could. Jeff and I are still determined to experience more in this life, because our bodies allow us to. We feel we owe that to our youngest daughter. We want… Continue reading Artful ashes
Blake has been gone just over six weeks. I have absolutely no idea how that much time has passed. We had spent 5 months and 1 day since she was diagnosed trying to prepare ourselves, for her to leave, as best we could. Let’s be real; there is no preparation. There’s no way to be… Continue reading Six weeks
Blake’s first birthday is coming up on September 17. I remember the day I met her so vividly; it is tied with the birth of her older sister as the best day of my life. The doctor told me to push and I did –once- and there she was. She wouldn’t let me put her… Continue reading Blake’s First Birthday
The last 21 days have been very intense for our family. We lost Blake so quickly, I’m not ready to even speak about that yet, let alone put it out here. It’s been the longest 21 days of my life. It truly feels like forever. I miss her so much and it hurts so bad.… Continue reading Blake’s Celebration
I want to thank those of you who have reached out to me; it means a lot during this extremely difficult time. People whom I’ve never met are taking the time to think of us and pray for my family. That really blows me away and I’m grateful. Many people have asked how we’re doing.… Continue reading Easy?
We are devastated to let all of you know, our sweet Blake Avery took her last breath this afternoon. She was in her Daddy’s arms, with all of us, at the park listening to music. There was no struggle or pain which we are so grateful for. We are heartbroken, we miss her and love… Continue reading Blake Avery Reid
August is SMA Awareness Month! SMA is Spinal Muscular Atrophy. Most of you already know SMA Type 1 is what our Blake has. But- did you know 1 in 40 people are SMA carriers? Blake was diagnosed shortly before she was six months old. SMA has no treatment. SMA has no cure. In honor of… Continue reading Team Blake
Still Finding Sunshine 