Recently, I’ve had a great deal of really nice comments from people. They’ve said things about me “having it all together”, “handling loss with grace” and “being so strong.” I’m so appreciative of people who reach out to me and say kind things. I really, really am. They also got me thinking about what I… Continue reading All together? Nope.
Today marks the second anniversary of Blake’s death. Some people call it an angelversary or remembrance of the date of passing. It’s just a really hard and shitty day for Jeff and I. It’s a reminder (although we never forget) that our baby is no longer with us. It feels like yesterday and so long… Continue reading August 10, 2016
Today, August 1, marks the beginning of SMA (Spinal Muscular Atrophy) Awareness month. August is my least favorite month of the year. On the 10th, we will come around to the second anniversary of Blake’s death. The only thing that helps me through this month is trying to do good in her name and making… Continue reading SMA awareness month
It feels like Blakey slips away more and more as time passes. It’s harder for us to find moments that are full of her. A while back the idea came up to plant a tree for her. At first I thought it was silly. Then I realized the meaning of it: something that we could… Continue reading A tree for my girl
Last year for Blake’s first birthday we did a toy drive in her honor. We collected toys and comfort items for other babies who had been diagnosed with SMA. It was wildly successful, mostly due to all of your generous donations, and we were able to send boxes and boxes to Cure SMA. On our… Continue reading Families in the hospital
This time last year, we started fundraising for the annual Cure SMA Walk-n-Roll that happens in our area. CureSMA is an organization we were introduced to shortly after Blake’s diagnosis. They do a lot of important and helpful things for families like ours during their most difficult times, all while passionately trying to find a… Continue reading Team Blake
This is something I wrote for the newsletter of a local support group, Parents of Puget Sound Support. They offer resources for families in the Pacific Northwest who have lost a child through miscarriage, stillbirth or in infancy. I thought I would share here too. It was the day of my daughter’s Celebration of Life.… Continue reading Never the same