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Still Finding Sunshine

Sharing the story of our family and our daughter who was diagnosed with Spinal Muscular Atrophy, type 1

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Tag: Curesma

Team Blake 2020
Blake

Team Blake 2020

June 8, 2020July 16, 2020 BlakesMama1 Comment

It’s that time of year again! We’re raising funds as Team Blake for Cure SMA. This is our fifth year making Team Blake shirts. We design a new one every year around this time because of a walk we do for Cure SMA. In years past we have used a t-shirt company to process the… Continue reading Team Blake 2020

All together? Nope.
grief · Life

All together? Nope.

August 22, 2018August 22, 2018 BlakesMama2 Comments

Recently, I’ve had a great deal of really nice comments from people. They’ve said things about me “having it all together”, “handling loss with grace” and “being so strong.” I’m so appreciative of people who reach out to me and say kind things. I really, really am. They also got me thinking about what I… Continue reading All together? Nope.

August 10, 2016
Blake · grief

August 10, 2016

August 10, 2018August 10, 2018 BlakesMamaLeave a comment

Today marks the second anniversary of Blake’s death. Some people call it an angelversary or remembrance of the date of passing. It’s just a really hard and shitty day for Jeff and I. It’s a reminder (although we never forget) that our baby is no longer with us. It feels like yesterday and so long… Continue reading August 10, 2016

SMA awareness month
Blake

SMA awareness month

August 1, 2018August 1, 2018 BlakesMama1 Comment

Today, August 1, marks the beginning of SMA (Spinal Muscular Atrophy) Awareness month. August is my least favorite month of the year. On the 10th, we will come around to the second anniversary of Blake’s death. The only thing that helps me through this month is trying to do good in her name and making… Continue reading SMA awareness month

A tree for my girl
Blake · grief

A tree for my girl

June 11, 2018 BlakesMama2 Comments

It feels like Blakey slips away more and more as time passes. It’s harder for us to find moments that are full of her. A while back the idea came up to plant a tree for her. At first I thought it was silly. Then I realized the meaning of it: something that we could… Continue reading A tree for my girl

Families in the hospital
grief

Families in the hospital

November 28, 2017April 13, 2020 BlakesMamaImageLeave a comment

Last year for Blake’s first birthday we did a toy drive in her honor. We collected toys and comfort items for other babies who had been diagnosed with SMA. It was wildly successful, mostly due to all of your generous donations, and we were able to send boxes and boxes to Cure SMA. On our… Continue reading Families in the hospital

Team Blake
Blake

Team Blake

June 12, 2017 BlakesMamaLeave a comment

This time last year, we started fundraising for the annual Cure SMA Walk-n-Roll that happens in our area. CureSMA is an organization we were introduced to shortly after Blake’s diagnosis. They do a lot of important and helpful things for families like ours during their most difficult times, all while passionately trying to find a… Continue reading Team Blake

Never the same
grief

Never the same

May 9, 2017May 9, 2017 BlakesMamaLeave a comment

This is something I wrote for the newsletter of a local support group, Parents of Puget Sound Support. They offer resources for families in the Pacific Northwest who have lost a child through miscarriage, stillbirth or in infancy. I thought I would share here too. It was the day of my daughter’s Celebration of Life.… Continue reading Never the same

Diagnosis day
Blake · grief

Diagnosis day

March 9, 2017 BlakesMama4 Comments

A year ago today, Jeff, Blake and I sat in an exam room at Seattle Children’s Hospital. I was holding my sweet baby girl as she was falling asleep. We were alone, waiting for the doctors to come back in. They were going to tell me something I already knew. They were going to tell… Continue reading Diagnosis day

Running
Blake · grief

Running

December 1, 2016December 1, 2016 BlakesMama2 Comments

I was going through some of my mom’s pictures last night. Sometimes, I like to look at the photos my family took of Blake instead of my own. They have tons I’ve never seen (or don’t remember seeing) and I like that. This one in particular struck me. I mean, they all do, but today… Continue reading Running

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