The other day Jeff and I were packing the kids up to run an errand. Jeff put Blake in her car seat while I helped Kenley get her shoes on. He suddenly remembered that he left the dogs in the backyard, so he ran outside. I picked up Blake, held Kenley’s hand and started toward… Continue reading Forget
I’ve realized a lot of time in this blog has been spent talking about SMA. In the beginning, we were really focused on bringing awareness so another family wouldn’t have to go through what we’re going through. In the midst of that we’ve been getting many, many questions about SMA (which is good, because we… Continue reading All about Blake
The featured image is one of my favorites. Brand new baby Blake in Daddy’s arms. I’ve been taking even more pictures than I used to. The other night I started going through them. I had just ordered hundreds more to add to the stacks of pictures I still have to sort through. I was really good… Continue reading A picture
My mom always says I’ve been a mother my whole life, even when I was a little kid. I loved dolls; I was borderline obsessed with them. My family called me “little mommy”. I begged my big sister to walk me to the hospital, three blocks away from our house, so I could go and… Continue reading Being a mom
I’ve learned a lot about SMA, but I’m still no genetics expert. Jeff and I have an appointment in the future with our hospital genetics department for just the two of us. We want to understand a lot more and I know we’ll keep learning. With that being said, I want to talk about my experiences during both… Continue reading Genetics
I’ve had a lot of people say some really nice things. They say I’m strong or doing so well under the circumstances. Those words really do mean a lot to me. I appreciate them more than I can express. However, I want to make sure not to give anyone a false sense of reality. I’m… Continue reading Hard
From where I sit, dreams are a blessing and a curse. They often feel too much like reality. I’ve had the same dream over and over since Blake was about 2 1/2 months old. In this dream I’m holding Blake, she smiles at me, babbling. I smile back and make funny faces. Then, I stand… Continue reading Dreams
I’ve had an amazing relationship with Blake since the day we met. I have a great relationship with Kenley, too, but things were different when she was tiny. I was a first time mom; nervous and trying to do everything perfectly. With Blake, I relaxed a lot more and just kind of went ‘with the… Continue reading What she needs
I’m sure it’s obvious from previous posts (and since I’m a human being) that anger is something I feel on the regular. I never thought anything could happen to my child. Bet that sounds naive. It is. I always figured, once your baby is born and examined, you’re good. I knew raising children would include… Continue reading Pissed
After you’ve been told your baby has a fatal illness, nothing in the world makes sense. Everything is wrong, so very wrong. I think back on the first couple of days after we found out, which wasn’t that long ago, and I don’t remember a lot. Obviously, a ton of crying happened… a ton. I… Continue reading The days after diagnosis
Still Finding Sunshine 