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Still Finding Sunshine

Sharing the story of our family and our daughter who was diagnosed with Spinal Muscular Atrophy, type 1

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Tag: SMA

Camping
Family

Camping

July 2, 2016July 2, 2016 BlakesMama4 Comments

One thing Jeff and I had in common from the beginning of our relationship was our love of camping. As I’m typing this, that sounds strange; but, we’re strange, so whatever! We talked about camping in a tent. Then I was pregnant with Kenley, so I wasn’t a fan of sleeping on the ground. When… Continue reading Camping

Bunk beds
Family

Bunk beds

June 15, 2016June 15, 2016 BlakesMama4 Comments

We bought a sectional when I was pregnant with Blake. A couple months ago it started making noises. We had the warranty people come and look at it; turns out it’s toast and we get a new one!  We decided to make a day of going to the furniture store to find a brand new… Continue reading Bunk beds

Jeff
Family · Life

Jeff

May 28, 2016May 28, 2016 BlakesMama5 Comments

Jeff and I have been through what some might consider challenging times. Before we got married, Jeff joined the Army and we were long distance for a year. Right after we married, Jeff deployed to Iraq. Shortly after he came home, he was medically retired from the Army. I came back home to Washington and… Continue reading Jeff

A picture
Blake · Family

A picture

May 19, 2016May 19, 2016 BlakesMama4 Comments

The featured image is one of my favorites. Brand new baby Blake in Daddy’s arms. I’ve been taking even more pictures than I used to. The other night I started going through them. I had just ordered hundreds more to add to the stacks of pictures I still have to sort through. I was really good… Continue reading A picture

Being a mom
Blake · Kenley

Being a mom

May 9, 2016May 9, 2016 BlakesMama8 Comments

My mom always says I’ve been a mother my whole life, even when I was a little kid. I loved dolls; I was borderline obsessed with them. My family called me “little mommy”. I begged my big sister to walk me to the hospital, three blocks away from our house, so I could go and… Continue reading Being a mom

Blake · Family · Life

Genetics

May 2, 2016May 2, 2016 BlakesMama4 Comments

I’ve learned a lot about SMA, but I’m still no genetics expert. Jeff and I have an appointment in the future with our hospital genetics department for just the two of us. We want to understand a lot more and I know we’ll keep learning. With that being said, I want to talk about my experiences during both… Continue reading Genetics

Hard
Blake · Family · Life

Hard

April 26, 2016April 26, 2016 BlakesMama12 Comments

I’ve had a lot of people say some really nice things. They say I’m strong or doing so well under the circumstances. Those words really do mean a lot to me. I appreciate them more than I can express.  However, I want to make sure not to give anyone a false sense of reality. I’m… Continue reading Hard

Dreams
Blake

Dreams

April 24, 2016April 24, 2016 BlakesMama4 Comments

From where I sit, dreams are a blessing and a curse. They often feel too much like reality. I’ve had the same dream over and over since Blake was about 2 1/2 months old. In this dream I’m holding Blake, she smiles at me, babbling. I smile back and make funny faces. Then, I stand… Continue reading Dreams

What she needs
Blake · Family

What she needs

April 20, 2016 BlakesMama7 Comments

I’ve had an amazing relationship with Blake since the day we met. I have a great relationship with Kenley, too, but things were different when she was tiny. I was a first time mom; nervous and trying to do everything perfectly. With Blake, I relaxed a lot more and just kind of went ‘with the… Continue reading What she needs

All the people
Family · Life

All the people

April 15, 2016April 19, 2016 BlakesMama4 Comments

One of the most positive things to come out of Blake’s diagnosis is all the support we’re getting. Seriously, it’s overwhelming.  We love it so much. My mom has been staying at our house almost every night to help with anything we need. My sister has been staying over when my mom can’t and coming… Continue reading All the people

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