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Sharing the story of our family and our daughter who was diagnosed with Spinal Muscular Atrophy, type 1

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Tag: mama grief

You can’t replace
grief

You can’t replace

December 20, 2018 BlakesMamaLeave a comment

I was scrolling through Facebook the other night, which I do too often, when I saw a quote that someone shared. It was shared in a foster/adoption group so the reference was clearly to children. Before my rant, I want to mention that I don’t think that’s what this quote was intended for originally. I also… Continue reading You can’t replace

Parenting
Blake · Family · Life

Parenting

August 28, 2018August 28, 2018 BlakesMama3 Comments

Most loss parents dread the question, “How many children do you have?” I am one of them. I. Hate. It. Seriously, every single time I get that awful feeling of so much sadness and not knowing what to say. Do I tell them all about my family and accept the discomfort and look of terror… Continue reading Parenting

All together? Nope.
grief · Life

All together? Nope.

August 22, 2018August 22, 2018 BlakesMama2 Comments

Recently, I’ve had a great deal of really nice comments from people. They’ve said things about me “having it all together”, “handling loss with grace” and “being so strong.” I’m so appreciative of people who reach out to me and say kind things. I really, really am. They also got me thinking about what I… Continue reading All together? Nope.

A tree for my girl
Blake · grief

A tree for my girl

June 11, 2018 BlakesMama2 Comments

It feels like Blakey slips away more and more as time passes. It’s harder for us to find moments that are full of her. A while back the idea came up to plant a tree for her. At first I thought it was silly. Then I realized the meaning of it: something that we could… Continue reading A tree for my girl

Love never leaves
Blake · grief

Love never leaves

June 3, 2018 BlakesMamaLeave a comment

Today, the girls, Jeff and I attended an annual memorial service at Seattle Children’s. This was our first year since we were unable to go last year. We walked into the same auditorium I spoke on a parent panel back in March. This time there was a table full of pictures and mementos of children… Continue reading Love never leaves

Happy now?
grief · Life

Happy now?

May 19, 2018May 20, 2018 BlakesMama1 Comment

A very kind person made a comment to me the other day. She had looked at some of my Facebook photos and then said, “I’m so glad to see you are happy now after all you’ve been through.” That one really got me thinking. How do you measure happiness? Smiling for a photo? Laughing at… Continue reading Happy now?

Diagnosis day take 3
grief

Diagnosis day take 3

March 9, 2018March 13, 2018 BlakesMamaLeave a comment

This space of mine has been neglected lately. Between home life, my day job and The Sunshine Co., I feel like I’m going in a million directions. There are so many things that will stop me in my tracks because of my grief. So far, one of those things just happens to be dates. Today,… Continue reading Diagnosis day take 3

Never the same
grief

Never the same

May 9, 2017May 9, 2017 BlakesMamaLeave a comment

This is something I wrote for the newsletter of a local support group, Parents of Puget Sound Support. They offer resources for families in the Pacific Northwest who have lost a child through miscarriage, stillbirth or in infancy. I thought I would share here too. It was the day of my daughter’s Celebration of Life.… Continue reading Never the same

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