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Still Finding Sunshine

Sharing the story of our family and our daughter who was diagnosed with Spinal Muscular Atrophy, type 1

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Tag: pain

Never the same
grief

Never the same

May 9, 2017May 9, 2017 BlakesMamaLeave a comment

This is something I wrote for the newsletter of a local support group, Parents of Puget Sound Support. They offer resources for families in the Pacific Northwest who have lost a child through miscarriage, stillbirth or in infancy. I thought I would share here too. It was the day of my daughter’s Celebration of Life.… Continue reading Never the same

Fine
Blake · grief · Life

Fine

October 20, 2016October 20, 2016 BlakesMamaLeave a comment

I had an appointment with my grief therapist the other day. I haven’t seen her in a couple weeks because of Kenley’s leg and going back to work. She started asking me questions and I unloaded. I didn’t realize I had so many things to say. I told her I couldn’t understand why so many… Continue reading Fine

Nightmare
Blake · grief

Nightmare

October 6, 2016October 6, 2016 BlakesMama6 Comments

It’s unbelievable our Blake is actually gone. It’s still hard to believe SMA came into our lives and took my innocent baby girl. It’s hard to believe this happened to my family. But it did; it happened to us. It happened to me. I used to read a lot of tragic stories and think to… Continue reading Nightmare

Artful ashes
Blake · Family · grief

Artful ashes

September 26, 2016 BlakesMama2 Comments

Something that became very important to us, once SMA entered our lives, was having experiences. We wanted Blake to experience absolutely everything that she safely could. Jeff and I are still determined to experience more in this life, because our bodies allow us to. We feel we owe that to our youngest daughter. We want… Continue reading Artful ashes

Hard
Blake · Family · Life

Hard

April 26, 2016April 26, 2016 BlakesMama12 Comments

I’ve had a lot of people say some really nice things. They say I’m strong or doing so well under the circumstances. Those words really do mean a lot to me. I appreciate them more than I can express.  However, I want to make sure not to give anyone a false sense of reality. I’m… Continue reading Hard

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