Jeff and I packed up Blake, left Kenley with my sister and headed to Seattle for our visit with Neurology. I had been nervous for every single appointment so far, but this one caused a special amount of anxiety. I was on the verge of barfing the whole way there. It’s like I somehow knew.… Continue reading You mentioned SMA

Welcome to what will, hopefully, be a blog people actually read. I’ve decided to start writing on here for a couple reasons. First and foremost, there are lots of family and friends who care about Blake and us that are very far away. I’d like to be able to share as much as I can… Continue reading The Beginning